There are many organizations that provide information about cleft lip/palate and craniofacial conditions. Here are a few websites you may find helpful to get you started.
The Cleftline website is sponsored by the Cleft Palate Foundation founded by the American Cleft Palate-Craniofacial Association in 1973 to be the public arm of the professional association. They also have a toll free number to provide information about clefting and other craniofacial conditions as well as referrals to local family support groups.
Cleft Palate Foundation
FACES provides financial support for non-medical expenses to patients traveling to a craniofacial center for treatment. Eligibility is based on financial and medical need. Resources include newsletters, information about craniofacial conditions, and networking opportunities.
FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
The Cleft Advocate provides advice for people who are fighting insurance denials for their medical care.
About Face USA provides educational and emotional support to persons born with craniofacial birth and acquired anomalies and their families.
PO Box 158
South Beloit, IL 61080
MUMS is a national parent to parent organization that is primarily a networking system to match parents who have children with the same or similar conditions.
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, Wisconsin 54301-1243
The Smile Train has a cleft information public library with access to full transcripts of numerous articles and studies related to every major cleft issue.