Tumor Registry

Contact: Jeanmarie M. Glasser, MS, RT(T), Cancer Registry Supervisor
Location: 215 CWB
Phone: 315 464-4610

The Tumor Registry provides a system to monitor all cancer patients diagnosed and/or treated at University Hospital. It provides critical information for cancer program planning, administrative planning, and allocation of hospital resources.

The Tumor Registry is responsible for the collection, management, and analysis of data on cancer patients, and for reporting these cases to the New York State Department of Health. Tumor Registrars work closely with physicians, hospital administrators, and health care practitioners to maintain ongoing records of the cancer patient's history, diagnosis, treatment, and outcome. This information is used for education, lifetime patient follow-up, and research. Registry data may be used to provide information on specified criteria for physicians; calculate survival rates; provide follow-up information on patients for evaluation of diagnosis, treatment, survival and early detection; develop educational programs for hospital personnel and educational materials for the public; and analyze referral patterns.

The Registrar is primarily responsible for complete and accurate data collection and maintenance. An abstract is compiled on each cancer patient based on a review of medical records, and reports from pathology, radiology, laboratory, and surgery, plus documentation of any and all treatments received by the patient. The registry includes patient demographics, medical history, occupation, occupational exposures, diagnostic findings, diagnosis, cancer treatment, and follow-up. In all circumstances, confidentiality of patient identifying information and related medical data is strictly maintained. The individual cancer patient is never identified outside the registry system, and only grouped data are analyzed and published.

Registrars are trained in medical terminology, anatomy and physiology, and data processing. They have a background in medical information specifically related to cancer and are specialists in data collection, records management, and data analysis. Registrars keep abreast of new developments in the field of oncology through continuing education in the form of conferences, seminars, tumor boards, and involvement in hospital and community cancer program activities. Professional recognition of the tumor registrar is provided through the National Cancer Registrars' Association. This association also offers a certification examination for applicants who meet specific qualifications. Individuals who pass the examination become certified tumor registrars.

The Tumor Registry is responsible to the hospital Cancer Committee, and the regulatory agency is the American College of Surgeons. The Registry is also responsible for compliance with the requirements of the Joint Commission on Cancer, the Joint Commission on the Accreditation of Healthcare Organizations, and the New York State Department of Health, as well as other state and federal agencies.

The Tumor Registry at University Hospital maintains data on over 30,000 cases, which have been entered since 1976. There were over 1800 new cases accessioned into the registry in 2007. Follow-up must be maintained on all patients diagnosed and/or treated at our facility, regardless of their disease status for the first five years post diagnosis. The Tumor Registry provided statistics to physicians for individual studies, and conducted patient care evaluation studies as required by the American College of Surgeons. University Hospital is accredited by the American College of Surgeons-Commission on Cancer.